Hi Friends! We have exciting news! IDA will be broadcasting the 2018 “Be the Voice” Awards Gala tonight, LIVE! Right here on Facebook, October 19th at 6:45 PT / 9:45 ET.
We understand that for most people living with invisible disabilities, travelling to this event is not possible. So, IDA is bringing the evening to you!
Since 2008, the IDA Team has provided videos of the Award Galas on YouTube so that people around the globe could watch and share in the evening’s awareness, awards, special guest speakers and entertainment! IDA has also provided partner tickets (as available) to many people living with invisible disabilities, who otherwise would not be able to attend!
However, for the first time this year, IDA is extremely excited to bring the evening LIVE to you, for all to enjoy!
Come as our guests! Compliments of IDA! Read more in the IDA post! See you there!
Be the Voice Part One: https://www.facebook.com/InvisibleDisabilities/videos/331493710731521/
My new Physical Therapist, whom I saw for the third time yesterday asked me, “So, how many pairs of these ‘lounge pants’ do you have??” I told him, “Oh boy! About 15!”
People don’t realize I wear pajamas day in and day out, because it is extremely difficult and energy zapping to change clothes and an all day process to shower and wash my hair.
I even wear them outside on the patio with my goats! My neighbors probably don’t just call me the Goat Lady, but the Pajama Goat Lady! LOL!
HEY! Just trying to survive over here! Gotta do what I gotta do!
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I created a new design for t-shirts, hoodies, mugs, bumper stickers and more! It was put on t-shirts, hoodies, totes, bumper stickers, mugs, buttons and more in the IDA Stuff Shop. All proceeds go to the Invisible Disabilities Association.
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#fakingit #illness #pain #injury #disability #disabled #invisibledisability #shirts #hoodies #mugs #bumperstickers #totes
I would like to explain that due to Multiple Sclerosis, I have had weak ankles and due to Lyme, joint issues. For 15 years, I have been dealing with loose ligaments in my ankles, causing multiple sprains and injuries. The last 2 sprains landed me in years of horrific pain, PT, ultrasound, lazer and Prolotherapy. Prolo is the only treatment for loose ligaments, as PT only helps the muscles and tendons.
Somewhere along the way, I must have fractured the ankle. So, after years of the tendon pulling on the joint, it broke off a chunk of the joint when I simply stood up.
Today, I see the doctor to find out if they need to screw the joint back together. This would not be good! I don’t do well with surgery nor metals in my body!
Even if this helped the bone to heal, I am still left with all the ankle issues I had before and the cause to this break. Thus, it will be another very long road of therapy, none of which will fix the ligaments (cannot do anymore Prolo).
As a result, my ankles will remain a ticking time bomb to future injuries and breaks, from just standing or walking. Therfore, I am not just up against a broken bone that will heal. My ankles haven’t healed after 15 years.
I have been unable to put any weight on my ankle for 2 weeks and have 4 more weeks to go before I can try. I cannot use crutches, so I’ve been using a knee scooter! This thing is AWESOME! I can ZOOM from the family to the kitchen in seconds!
Unfortunately, it was excruciatingly painful on my bad knee and hips! What’s more, pivoting on my other ankle has taken its toll and now I am unable to use my left foot either. So, back to my wheelchair I go. Not the best. Hard to reach things, it won’t fit through my doors and is hard on my back, neck and shoulders.
Needless to say, going to the bathroom, getting food, feeding the dog 8 times a day and taking a shower is quite the endeavor with MS, Lyme AND trying not to put weight on my ankles.
I have to say that Wayne has been a HUGE help when he is home and available! Couldn’t survive this without him! Thank you, sweetie! Also, thankful to the 3 friends who brought me food 2 weeks ago! … But I’m getting hungry again! LOL!
All in all, as you can see, this is not normal case of a broken bone that will heal and I go on. Nonetheless, I am forging ahead as best I can and trying to keep the hope I will be able to stand and walk again without continued injuries and breaks.
Thank you for your continued thoughts and prayers!! I REALLY NEED THEM!!
It hurts like heck and it has taken a very long time, but I am finally taking some steps with my walker!
UPDATE February 11:
I still have a bad sprain and tendinitis on both sides of my ankle. Doc has been concerned about the continued inflammation and lack of circulation in the past 7 weeks. But I guess I shouldn’t be surprised, given all the injuries, fracture to this ankle and MS.
Anyhow, I am graduating to the walking boot and PT! Praise God!
It’s going to take a while to ease my ankle into putting weight on it in the boot, lots of PT before I can graduate out of it and more time, before I can walk outside.
I barely moved it last Saturday and I thought I was going to die for 2 days. So, I still have a long road ahead. Slow and easy!
But did I mention NO SURGERY? Wahoo!
Thank you all for your love and prayers!!!
My hubby made me scrambled eggs and bacon today and it wasn’t even Sunday! Tee hee!
He’s been working so hard to take care of me since I broke my ankle! He doesn’t like to cook … no he seriously dislikes cooking and doesn’t cook. So, I appreciate the fact he has mastered breakfast! Sure beats my green drink now and then!
BIG KUDOS! Thank you, sweetie! ♡♡♡
UPDATE February 6:
Got an MRI last night. Need to see what is going on with my ankle, before we can decide the next step (ha ha). I am at risk of it breaking again when I stand on it, because the tendon broke it. So we must be sure the right protocol is put in place. They may need to screw the bone together.
I really don’t want surgery! Already been off it 6 weeks and would have to be off it another 6-8 weeks (and other complications ).
Either way, I will be up against more years of therapy, because this ankle has not healed in 15 years, has been injured so many times (just normal walking on it) and I was in therapy for years already. Dang it!
Please keep me in our prayers! I get the results Thursday. Hoping for a miracle!
PS) Not trying to be whiney. It is just so difficult and painful to get around (knees, hips, back, neck, other ankle). Most of all, I thrive on going outside with my animals. They keep me sane! Seriously! Can barely crawl to the patio once in a while. But all of this is just another thing on top of a ton of things, like my mom’s health and finances, I lost my insurance and am fighting getting it back, I am in a 3 month battle with my oxygen company who messed up my account beyond belief, financial stress, isolation and other things I won’t share on Facebook.